Please shoot me an email or call the RealTalk MS Listener Hotline and share your 526-2283Īnd don't forget to join us in the RealTalk MS Facebook group! And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. I've always thought of the RealTalk MS podcast as a conversation. Just copy this link & paste it into your text or email: Real ms iconquer ms android#Bruce Bebo shares the research that captured his attention at ECTRIMS 3:25ĭownload the RealTalk MS app for your iOS or Android device 21:03 If you're listening in the U.S., don't forget to vote next Tuesday 1:26ĭr. Greetings from the 2022 ECTRIMS Congress! :22 We have a lot to talk about! Are you ready for RealTalk MS?! Bruce Bebo, and I took up our vantage point on the steps right outside of the convention center to discuss the research that captured Dr. The opinions expressed in this column are not those of Multiple Sclerosis News Today or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to multiple sclerosis.Last week, over 7,000 MS researchers and clinicians from more than 100 countries traveled to Amsterdam to attend the 2022 ECTRIMS (European Committee for Treatment and Research in Multiple Sclerosis) Congress, the largest MS research conference in the world.Īs has become an annual ECTRIMS tradition on RealTalk MS, the National MS Society's Executive Vice-President of Research, Dr. Real ms iconquer ms professional#Never disregard professional medical advice or delay in seeking it because of something you have read on this website. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. It does not provide medical advice, diagnosis, or treatment. Note: Multiple Sclerosis News Today is strictly a news and information website about the disease. I would be thankful if you and your family and friends could join me at help shape this next step in NMSS research. Over 4,700 people worldwide have enrolled, and they participate by sharing their research questions and completing the semi-annual survey on REAL MS (which stands for Research Engagement About Life with Multiple Sclerosis). “We are excited to expand on our existing relationship with the Society through this effort to increase the power of our shared communities in the fight against MS.”Įach of you reading this can make a contribution to the ongoing work of iConquerMS, the ACP, and the NMSS by sharing your thoughts and experiences with multiple sclerosis. “The National Multiple Sclerosis Society serves a powerful community of people with MS, their care partners, loved ones, family and friends, as well as leading clinicians and researchers across the country,” said Robert McBurney, PhD, president and CEO of the Accelerated Cure Project for MS and co-principal investigator for iConquerMS. We may not have the knowledge to assist with the science of curing MS, but we must be part of the ongoing research that looks at what is important in our quality of life and daily living activities. It is only logical that those of us who are the true MS experts be included in research that matters and that can be impactful in improving our daily lives. We know this disease in ways more meaningful than just the science of T-cells, B-cells, and neuroimmunology. Real ms iconquer ms plus#“We look forward to collaborating further with Accelerated Cure Project and all that we can achieve together in supporting and advancing people-powered research in MS.”Īs you may have heard me say before, the main expert on multiple sclerosis is the person living with MS, plus their support team of partners, family, and friends. Real ms iconquer ms free#“We believe that research, and specifically research that keeps those living with MS at its center, is critical to reaching our bold vision of a world free of MS,” said Bruce Bebo, PhD, the society’s executive vice president of research. This is a major shift in the value of patient centricity in research. The NMSS’ “Pathways to a Cure” acknowledges the value of the voices of those affected by MS and the contributions we can make to solid research, even if we are not trained scientists. The society has always made research its primary focus, but almost exclusively from the perspective of researchers and what they thought we needed. Nowhere is this more evident than in the collaboration the ACP recently announced with the NMSS.
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